Newborn Screening Contacts and Practices Survey - (copy)

Thank you for your time today to complete our short survey. This survey aims to understand the processes and workflows for newborn screening specimen collection and transport from birthing facilities in North Carolina. If you believe you aren't the right person to be completing this survey, please forward it to someone else in your facility. The NC State Laboratory of Public Health is a recipient of a national NewSTEPs Timeliness in Newborn Screening grant to improve timeliness in several areas related to screening. In learning who you are and how you perform newborn screening at your facility, we hope to continue the partnership between the laboratory and birthing facilities. The newborn screening program recently celebrated its 50th anniversary and we will strive to continually work together to enhance this screening program that serves our tiniest patients.
Name: 


  1. Please provide the EIN (employer identification number) for your facility, including the suffix, if applicable. This is a 9-digit number entered onto the filter form under HOSPITAL/SPECIMEN SUBMITTER. Next to the EIN, provide the name associated with this EIN number.


  1. What is your job role/title?
    Laboratory manager/director
    Nursery manager/director
    Phlebotomist
    Laboratory technologist/technician
    Hospital administrator
    Other


  1. If you responded OTHER to your job/title, please describe your position below.


  1. Within your area of the birthing facility, where are the newborn screening specimens collected? You may choose more than one area.
    In the nursery
    In the laboratory
    At the bedside
    Home birth


  1. Who is responsible for collecting newborn screening specimens in your regular nursery/rooming-in/mother-baby unit? You may choose more than one answer.
    Nurses
    Laboratory staff
    Nurses and laboratory staff
    Unknown


  1. If your facility has a NICU, who is responsible for specimen collection in the NICU? You may choose more than one answer.
    Nurses
    Laboratory staff
    Nurses and laboratory staff
    Unknown


  1. What is the average number of hours, after birth, at which you collect an initial newborn screening specimen?
    < 12 hours of age
    12-24 hours of age
    >24-48 hours of age
    >48 hours of age


  1. What factors affect the number of hours after birth at which you collect a newborn screening specimen?
    Facility policy
    Staffing
    Early discharge/transfer of newborn
    Newborn's medical condition
    Other


  1. On average, how much time elapses between completion of specimen drying and specimens being packaged for transport?
    Less than 3 hours
    3-4 hours
    5-8 hours
    8-12 hours
    12-24 hours
    More than 24 hours


  1. Once your specimens have dried, how are they routed from the collection site to the site of transport to the screening laboratory?
    Nursery staff take the specimens to the mailroom for transport
    Hospital staff pick up the specimens in the nursery
    Staff take the specimens to the transport facility (USPS, FedEx, UPS, etc.)
    Courier/delivery service picks up the specimens at designated location/s.


  1. Newborn Screening specimens should be transported Monday-Saturday, if ready. Do you routinely transport specimens from your facility on Saturdays?
    Yes, we send all ready specimens out on Saturdays
    No, see next question


  1. If you do not send out newborn screening specimens on Saturdays, what are the reasons?
    Facility is closed (mailroom, materials management)
    Cost
    Staffing
    Not aware specimens should be sent out on Saturdays


  1. Does your facility keep a log/documentation of who collects specimens and from what infants?
    Yes
    No


  1. For those keeping logs of specimen collectors, do you do re-training for those collecting multiple unsatisfactory specimens? What activities are included in your re-training?


  1. Do you refer to the NC State Laboratory of Public Health's Newborn Screening website (http://slph.ncpublichealth.com/) and the website for Women's and Children's Health (https://www2.ncdhhs.gov/dph/wch/families/newbornmetabolic.htm) for newborn screening resources?
    Yes, I search the state lab's website for information
    yes, I search the Women's and Children website for information
    I consult both websites
    I did not know the websites offered education and resources


  1. What educational materials and resources for newborn screening would be beneficial to you?


  1. Thank you for taking time to expand our understanding of your contributions to newborn screening in your facility. This information gives us a greater awareness of the varied approaches to newborn screening and the situations that may impact your timely transport of specimens. We would appreciate your contact information should we have follow-up questions regarding your responses. In the three "free response questions" that follow, provide your Name, e-Mail Address, and Telephone Number.


  1. Your First and Last Names


  1. Your telephone number and extension, if applicable.


  1. Your e-mail address





Michaela Creech
Laboratory Improvement Coordinator
NC State Laboratory of Public Health
NC